Thursday, May 28, 2009

Tardive Dyskinesia II: What it Looks Like © Megan Snider

"This shaking keeps me steady. I should know.What falls away is always. And is near.I wake to sleep, and take my waking slow. I learn by going where I have to go."
--Roethke "The Waking" (click to read)

First off, let's start with what it looks like.

Here are some videos exposing the effects of dystonia and dykinesia. Dystonia and dykinesia are related movement disorders. Dykinesia is usually in the face and is caused by either prolonged ingestion of antipsychotics over the years or in response to a high does of antipsychotics in one ingestion, but it can also affect the body in a way similar to Dystonia. (It happened to me.)

If these videos disturb you, then I have done my job well.

Tardive Dystonia-- In Body and Face (click to watch.) PERMANENT. ***Disturbing***
Dystonia-- In Body and Face (click to watch.) PERMANENT. ***Disturbing***
Dystonia--In Body and Face (click to watch.) PERMANENT. ***Disturbing***
Tardive Dyskinesia-- In Hands, Face, and Mouth (click to watch.) PERMANENT. ***Disturbing***

The muscle rigor, extensions, movements, and convulsions you see here are INVOLUNTARY.

With Dyskinesia, when you see someone bearing their teeth, grinding their teeth or moving their mouth it is involuntary and it is painful.

When I had Tardive Dyskinesia, I remember my mother once asking me if I was smiling in the E.R.

No, I wasn't.

© Megan Snider



  1. Oh my god.

    Thank you for these posts, the links.

    There is nothing positive I can say in this comment section. Unfair, discouraging, tragic...

    more later, Megan, when I've composed myself (and finished today's project). Peace be with you. And Amy.

  2. Yes, thank you. I don't know how these people live EVERY DAY with this. I did it for three hours and I was praying my soul away for it to stop. She's pretty amazing to live with that.